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Faith-Based African American Cancer Survivorship Storytelling

Status
Active
Cancer Type
Hematopoietic Malignancies
Solid Tumor
Trial Phase
Eligibility
18 Years and older, Male and Female
Study Type
Supportive care
NCT ID
NCT03082612
Protocol IDs
EU3999-17 (primary)
NCI-2017-00980
IRB00093110
Study Sponsor
Emory University Hospital/Winship Cancer Institute

Summary

This trial explores those things that make a diagnosis of cancer upsetting or stressful and to also find out whether seeing videos of other African American cancer survivors talking about their experience and listening to the religious songs and text they used will help you relieve psychological stress in current cancer patients and their family members. The information learned from this research may help other African American cancer patients and their family members during a diagnosis and treatment for cancer.

Objectives

PRIMARY OBJECTIVES:
I. Develop a series of professionally edited narrative video recordings of African American cancer patient and family caregivers (FCG) survivorship narratives that are grounded in the strong spiritual culture of African Americans.
II. Evaluate the usability and acceptability of this intervention. Usability is evaluated through clarity, persuasiveness, and ease of use.

OUTLINE:
Patients watch a brief series of survivorship videos over 30 minutes of other African Americans who have had treatment for cancer over 3 weeks. Patients also complete 5 interviews over 45 minutes at baseline, after each viewing of video recordings, and at 6 weeks. Patients may also be asked to have their own story video recorded.

Eligibility

  1. PATIENTS: Age 30-89 years
  2. PATIENTS: Newly diagnosed with any stage cancer
  3. PATIENTS: Treatment plans to include weekly outpatient chemotherapy
  4. PATIENTS: Previously screened and with greater than 0 level of psychological distress
  5. PATIENTS: Willingness to participate in all study activities including data collection
  6. PATIENTS: Willing to identify a FCG (immediate or extended family member) to participate
  7. FCGs: 18 years or older
  8. FCGs: Able to provide informed consent
  9. FCGs: Willingness to participate in study activities including data collection

Treatment Sites in Georgia

Grady Memorial Hospital


80 Jesse Hill Jr. Drive, SE
Atlanta, GA 30303
www.gradyhealth.org

**Clinical trials are research studies that involve people. These studies test new ways to prevent, detect, diagnose, or treat diseases. People who take part in cancer clinical trials have an opportunity to contribute to scientists’ knowledge about cancer and to help in the development of improved cancer treatments. They also receive state-of-the-art care from cancer experts... Click here to learn more about clinical trials.